Living with chronic fatigue syndrome (CFS) can be a challenging and isolating experience. For Dave Clark, a 17-year survivor of CFS, it feels like being erased. CFS affects up to 250,000 Australians, with 90% experiencing disabling symptoms. The condition, also known as myalgic encephalomyelitis (ME), often goes unseen. Clark’s own battle with CFS began after a bout of glandular fever when he was 21.
CFS leaves Clark constantly exhausted as sleep no longer replenishes his energy levels. His limbs shake, he gets light-headed, and he often finds himself lying down to cope with the symptoms. The inflammation caused by CFS affects his whole body and brain. Clark experiences a constant sore throat, overheating, disrupted bowel movements, and hypersensitivity to noise and light. He also struggles with brain fog, making it difficult to communicate clearly or remember details.
One of the most challenging aspects of CFS is the post-exertion malaise. Even minor activities like a short walk or a conversation can lead to a debilitating increase in symptoms for weeks. This irregular rhythm of illness erodes Clark’s confidence in his own body, leaving him feeling like a dormant seed waiting for enough energy to finally come alive.
Managing his condition requires a meticulous daily routine. Clark takes a combination of 15 tablets and five powders, which amounts to a significant portion of his income. Without medication, he struggles to participate in daily life. Unfortunately, the lack of funding and research for CFS in Australia exacerbates feelings of worthlessness that often accompany the illness.
Microaggressions and dismissive attitudes from medical professionals further compound Clark’s challenges. Many have belittled or mocked his condition, suggesting it is all in his head or not a real illness at all. Each insensitive remark cancels his call for help and spreads shame throughout his body.
Despite these obstacles, Clark has found a way to reclaim a meaningful existence. He has learned to accept and appreciate his body’s limitations, embracing a slower and gentler pace of living. Clark finds joy in small things like gardening, enjoying a cup of chai tea, reading a good book, and spending time with loved ones. He also finds purpose in deepening his relationships, nurturing his faith, engaging in the arts, and supporting others during difficult times through his work as a counselor.
To maintain a consistent level of energy, Clark carefully plans his week and prioritizes activities that align with his values. He practices saying no to things that will drain his limited energy, reserving it for meaningful connections with good people who understand and accommodate his condition. The love and support he receives from his wife, Bek, and close friends remind him of his inherent worth as a human being, regardless of what his body can or cannot do.
While CFS continues to challenge Clark’s health, his sense of self-worth remains steadfast. He serves as an inspiration to others living with chronic illnesses, showing that it is possible to create a fulfilling life even in the face of adversity.
